Archive | Steph Diorio RSS feed for this section

A Historic Look at the Spanish Flu

27 Apr

The situation we find ourselves in is not normal. That’s very evident the moment you step outside with your mask on. Hoboken’s normally bustling streets are lifeless save for the occasional ambulance or delivery person risking their own health to protect others by keeping them indoors and away from others. The playground equipment in the parks sits silently, the familiar creak of swings no longer filling the air as you walk past. When you reach your destination, most likely the grocery store, everyone is staying six feet apart.  The employees are all wearing masks and gloves and are separated from the customers by Plexiglas. You escape back into your home with your groceries, wipe them all down, wash your hands thoroughly. You now have enough supplies to hunker down here for a few weeks without leaving again. 

With very few changes, what I just described could also be describing Hoboken in 1918. Between 1918 and 1920, a strain of H1N1 made its way across the world, infecting and killing person after person in what became known as the 1918 Influenza Pandemic. Due to World War I, a lot of the participating nations were reluctant to initially report on the disease, but neutral Spain had a lot of coverage on the subject, and thus the strain was erroneously known for years as the Spanish Flu, as it was perceived to have originated there. Much like today, the United States had a slower initial response to the flu outbreak, with disastrous results. The first known case in New Jersey was a soldier stationed at Fort Dix who had returned from World War I, and by early October the state went into a statewide quarantine, which was eventually lifted in November as cases slowed down. The pandemic ravaged the world until 1920, but New Jersey had the bulk of its experience in the fall of 1918. Overall, approximately 10,000 New Jerseyans would die of influenza during this period, with over 2,000 of those in Newark alone due to a very lax and irresponsible response from Mayor Charles P. Gillen, which you can read about here. The United States was tragically slow to respond to the growing crisis, as can be seen by these Jersey Journal articles here:

Eventually, though, people realized the seriousness of everything and kicked into gear.

In the case of COVID-19, Hoboken has done quite well for itself – with such a large population tucked into one square mile, the city locked down earlier than most of the United States, and the proactive response is paying off – in a city of approximately 53,000 residents, 293 positive tests have been reported within the Mile Square City, which is equal to less than 1% of the population of the city. That’s honestly incredible, and it shows that a proactive response and social distancing work. Unfortunately, we’ve still lost residents here, and each loss is felt by the entire community. If we’re lucky, no more Hobokenites will fall to this virus’s spread. 

The backbone of Hoboken, and indeed the entire world, during this time have been the essential workers – the grocery store and pharmacy employees, the cleaning crews, the police and fire departments, and any and all medical personnel, including the Volunteer Ambulance Corps. The same was true of 1918, as these articles from the Jersey Journal show:

Looking at a list of how to protect oneself that ran in the Jersey Journal, it’s quite clear that many things are exactly the same:

flu 7

And of course, be careful about treatment! This is a time when you’re going to see all manner of “cures” floating about, regardless of whether or not they actually work. Whilst looking for these articles, I found a few ads for some treatments that may or may not have been effective…

Lastly, as an interesting side note, when I was looking for these articles, I stumbled upon this one, which had an added element of another epidemic that followed hot on influenza’s heels: encephalitis lethargica. You can read more about encephalitis lethargica and the attempts to treat it with L-DOPA in Dr. Oliver Sacks’s landmark book Awakenings, which can be found in the BCCLS system here and is a highly recommended read

Hoboken residents can do their own historic research in the Jersey Journal by going to our collection from Newsbank.  You can check out a collection of ebooks with helpful health information for adults and kids from eBCCLS.

Stay safe out there – the library cares about you!

Written by:
Steph Diorio
History Librarian

Recommendations for Autism Acceptance Month

8 Apr

It is admittedly difficult all the time to be an openly autistic woman in this society. I’ve now lived that life for nearly 31 years, being “out” as autistic for 11 of them. I was diagnosed in 2009 at the age of 20 and decided to be forthright with people about it in the hopes that it would help them understand me better. It ended up leading me down a different path than I expected – I became a self-advocate, and I’ve now spoken at conferences regarding libraries and autism. If you’d told the scared 20-year-old that she’d someday do public speaking about her newly-diagnosed brain, how it works, and how best to accommodate it, she wouldn’t have believed you. That’s how it turned out for me, however, and it all started because I decided to begin writing a blog about being autistic and began finding other openly autistic people.

The hardest time to be autistic is the month of April. April has been declared Autism Awareness Month, but autistic people prefer the term Autistic Acceptance Month. This is because “awareness”can portray us as tragedies or burdens rather than people with different support needs living in a society not designed for us. April is therefore a very stressful month for us as we have to listen to people trying to “cure” something that can’t be cured and refusing to accept our differences as a natural part of the human condition.

To help combat those views, as they are prejudices many hold unknowingly due to how autism has traditionally been portrayed, I’ve decided to compile a list of books written by autistic authors about the autistic experience – and one book written by a non-autistic author who nevertheless has compiled an excellent history of our struggle for societal acceptance.

Look Me In The Eye
by John Elder Robison
Look me in the Eye
Look Me In The Eye by John Elder Robison is probably the best-known memoir by an autistic person. Robison is a public speaker now (I’ve had the honor of seeing him in person – we were on the same bill at a conference!). It’s a good starting point if you’re interested in seeking out autistic voices. Robison went undiagnosed for a large portion of his life, as many of us did (especially older autistic people), and he was finally diagnosed at age 40. Autism aside, his life is just plain interesting to read about because he’s had some really cool jobs, so I double recommend this one!

Pretending To Be Normal
by Liane Holliday Willey
Pretending to be Normal
Pretending To Be Normal by Liane Holliday Willey is another perspective on growing up undiagnosed until adulthood. The title has always resonated with me, because I’ve spent large portions of my life pretending to be “normal” just to protect myself from other people and their judgment, which is often harsh. It’s often especially difficult for women to get a diagnosis because autism is still frequently perceived as a “boy’s club” – indeed, I was a fairly obvious case in retrospect but wasn’t diagnosed until age 20. It’s especially common for autistic women to figure it out themselves before seeking or receiving a formal diagnosis because of this gender bias.

Funny, You Don’t Look Autistic
by Michael McCreary
Funny You Don't Look Autistic
Funny, You Don’t Look Autistic by Michael McCreary definitely has my favorite title on the list because, well, we’re told that all the time. People seem to think autism has a “look” somehow. It doesn’t. I often wonder if this is because Down Syndrome and certain other conditions have a chromosomal element that alters physical appearance so the public assumes autism must have one too. McCreary is living my dream and is doing comedy, which is what I’d hopefully be doing if I wasn’t an archivist instead. This book is also well suited for YA readers, so if you’ve got some teens looking for forthright information on autism this is a great book to pick up!  Currently it is part of Overdrive’s Big Library Read which connects readers around the world with the same book at the same time without any waitlists or holds; this title will be part of the Big Read till April 13.

Neurotribes
by Steve Silberman
Neurotribes
Neurotribes by Steve Silberman was not written by an autistic person. Silberman isn’t one of us. However, he’s one of the best allies we’ve got, and Neurotribes is actually a comprehensive history of autism in society. Silberman certainly understands cultural stigmatization – he’s a Jewish gay man – and he brings that nuance to what is a wonderfully crafted history. I’m very proud to count him as an ally in the fight for autistic rights and acceptance.

We hope these books will help our non-autistic readers on their way to being a better ally to the autistic people in your life – and trust me, the odds are good you know at least one of us, even if you don’t know it yet!  If you are autistic and have a favorite book to recommend, please share it in our comments.

Thanks for all your support, and stay safe during this time, everyone!

Written by:
Steph Diorio
History Librarian

Besides being the local history librarian, Steph Diorio is an autistic self-advocate. She has, spoken at Targeting Autism, a conference regarding autism and libraries, twice. She is also the founder of the Autistic Gaming Initiative, a team of autistic gamers who livestream once a month to support the Autistic Self-Advocacy Network and Autistic Women and Nonbinary Network.